Saturday, May 25, 2019

In 2016 Alia was a happy and healthy 3 year old who was suddenly diagnosed with Metachromatic Leukodystrophy. MLD is a rare neuro-metabolic genetic condition with progressive damage to the myelin sheath in central nervous system and the peripheral nervous system. This damage results in seizures, loss of walking, sitting, talking, eating, swallowing, smiling, moving, vision, breathing and eventually death. To date, there is no cure. Join us to support Alia and many other children suffering with this rare disease. Help Alia fight back! All funds raised will be used to offset loss of income to Alia's family and cost of care for Alia's increasing medical needs. A portion of the funds will be donated to the MLD Foundation who fight relentlessly to find a cure.